Was there a time when Friday's used to be the best day ever?
Now, Friday is when I tally all of my unfinished projects and fit them into time slots over Saturday and Sunday for completion.
I've allowed my brain and heart to take over once again, and am semi conscious after a 3 day stint of being awake.
Today is Zombie day....enough to get by, but not enough to accomplish anything without lots and lots of energy.
So I will break my day down for you like this:
Complete the questionnaire for Dr. Doherty at The Natural Care Clinic. Who knew I would have to remember X's APGAR scores, and the length of his ear infection in 2003. I went through hisbarely touched baby book to get dates for standing alone, and first words. I've sent her all documents except for the results of his allergy panel from Spectrum Health care Inc.
Write a letter explaining why X deserves tuition support so he can enroll at Bridgeway Academy. I've sent a Psycho Educational Assessment from Dr.Corkum and Observations/Program Direction from Elizabeth Allard and have been warned we will most likely be denied. We are already thinking ahead in preparation for the next stage of 'begging'. Also, keeping on top of staff within the school who are going to make this process as painful and difficult as can possibly be, considering....
Our formal complaint has been filed by the Nova Scotia Human Rights Commission against the Chignecto Central Regional School board for differential treatment against X in the matter of the provision of or access to services or facilities on account of his disability. I received their response this afternoon and could not get past the second page withoutfeeling as if I was swallowing a whole pigeon crying. It appears I am a delusional parent of Doogie Howser and know nothing about Autism.
While content we have received X's Comprehensive Stool Analysis, Organic Acid , and Urine Amino Acids profile from Great Plains, we now face the reality of finding money to pay for both the services required to translate/develop a protocol based on these findings AND cover the costs of supplements needed. Spending some much needed time on favorite websites recalling how the body operates and preparing myself for the appointment next week.
I'm guessing that stumbling upon $3500 in 6 days should help. So my weekend will now be spent applying for grants, trimming costs, and slipping back into a severe depression. I am hurt, angry, and feel powerless.
Oh..if your wondering why I cannot sit and listen to other parents go on about the brutal decisions they make each day, like whether they should get Tim Horton's coffee on the Eastside, or Westside...that's why.
Now, Friday is when I tally all of my unfinished projects and fit them into time slots over Saturday and Sunday for completion.
I've allowed my brain and heart to take over once again, and am semi conscious after a 3 day stint of being awake.
Today is Zombie day....enough to get by, but not enough to accomplish anything without lots and lots of energy.
So I will break my day down for you like this:
Complete the questionnaire for Dr. Doherty at The Natural Care Clinic. Who knew I would have to remember X's APGAR scores, and the length of his ear infection in 2003. I went through his
Write a letter explaining why X deserves tuition support so he can enroll at Bridgeway Academy. I've sent a Psycho Educational Assessment from Dr.Corkum and Observations/Program Direction from Elizabeth Allard and have been warned we will most likely be denied. We are already thinking ahead in preparation for the next stage of 'begging'. Also, keeping on top of staff within the school who are going to make this process as painful and difficult as can possibly be, considering....
Our formal complaint has been filed by the Nova Scotia Human Rights Commission against the Chignecto Central Regional School board for differential treatment against X in the matter of the provision of or access to services or facilities on account of his disability. I received their response this afternoon and could not get past the second page without
While content we have received X's Comprehensive Stool Analysis, Organic Acid , and Urine Amino Acids profile from Great Plains, we now face the reality of finding money to pay for both the services required to translate/develop a protocol based on these findings AND cover the costs of supplements needed. Spending some much needed time on favorite websites recalling how the body operates and preparing myself for the appointment next week.
I'm guessing that stumbling upon $3500 in 6 days should help. So my weekend will now be spent applying for grants, trimming costs, and slipping back into a severe depression. I am hurt, angry, and feel powerless.
Oh..if your wondering why I cannot sit and listen to other parents go on about the brutal decisions they make each day, like whether they should get Tim Horton's coffee on the Eastside, or Westside...that's why.
1 comment:
Hi T. I tried getting accessing the reports and the findings but was not able. I think you are an amazing mom and I bow to your goddess-like abilities. Keep fighting the good fight. You know you are doing the best you can for your child. Hopefully this will pave the way for all of us in finding educational choices that work for our children. Someone has to break down the walls - try not to let it fall down on you. k
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